It is certainly devastating to know that your child has been diagnosed with chronic kidney disease. But once you have accepted this fact, you should learn how to cope with your child's CKD and participate actively in his care. This means you should work together with health care professionals.
The question that is hounding parents is how to go about it? How can they help their children? The first thing to keep in mind is to build a respectful and cooperative relationship with the health professionals who are taking care of the child's medical needs. During treatments or any hospitalizations you should try to go with your child. If there are instances where you cannot accompany your child make sure that another family member or close friend can go. It is also good to keep a record of your child's medical history so that it's easier to track medication and other treatments, especially when you are dealing with a new doctor.